Tag: Cystic fibrosis Ireland

Empower, educate and inform on integrative medicine for Cystic Fibrosis

Mind-Body in-depth COVID-19 (P.3)

March 27, 2020

Here we will take a look deeper into the evidience and how we can use mind body techniques during SARS-CoV-2 outbreak and beyond that may help improve a person with Cystic Fibrosis (PWCF) mental health.

Integrative Medicine: Information for Cystic Fibrosis and COVID-19 (Part 1)

March 20, 2020

It is of utmost importance to consult with your healthcare team if you have any symptoms of COVID-19 (refers to the disease, SARS-CoV-2 refers to the virus itself see here), it is also as important during this time to ensure you take all medications prescribed, do your air-way clearance and exercise, get a good nights…
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Information COVID-19

March 17, 2020

Sources: HSE, Departments of Health, ECDC

Complementary Symptom Management for Cystic Fibrosis (for healthcare professionals)

April 14, 2018

This booklet summaries the evidence into a systems approach addressing the most commonly affected organs in those with CF and provides some complementary management options which may be effective. The booklet also ventures into CF related diabetes occurring more often and becoming a significant burden within the CF community.

Research into Acupuncture for the Treatment of Cystic Fibrosis in Teenagers and Young Adults

June 9, 2015

Up to 59% of patients with Cystic Fibrosis (CF) experience significant pain and discomfort that may decrease their quality of life. The research we are conducting at Stanford University School of Medicine and Lucile Packard Children’s Hospital Stanford, generously funded by the Tracie Lawlor Trust for CF, is investigating whether acupuncture can help teens and…
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TLT co-funded researcher at Harvard Uni tackles Pseudomonas aeruginosa resistance

August 6, 2014

  By Sara Leiman post graduate student at Harvard University, USA Pseudomonas aeruginosa infections are the leading cause of mortality for cystic fibrosis (CF) patients . Work over the past decade has demonstrated that the danger of P. aeruginosa infections rests not only in this bacterium’s genetic resistance to many antibiotics, but also in its…
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Integrative Care: A mother’s point of view.

October 26, 2013

By Louise Byrne http://louisebyrnebooks.com/index.html Ava Li was diagnosed in 2008, a week before I turned 40. She was our first and only child and although the news broke our hearts at the time, there was some element of relief to know that we had been correct all along in feeling that something was awry. Because…
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Cystic Fibrosis – An Integrative Approach – by Lydia Daly

January 11, 2013

As a 20 year old CF sufferer, I have spent my fair share of time in and out of hospitals from a young age. I was diagnosed, later than normal, at the age of 5. I was wrongly diagnosed with asthma by my GP at the age of 3 and attended an asthma clinic until…
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A Path Less Conventional

February 1, 2011

I was born with Cystic Fibrosis and lost my younger brother to this life threatening genetic condition. For over quarter of a century I was a mind numbing robotic disciple of Western medicine, bowing to the latest wonder drug to improve aerosol respiration to improving my weight levels to staving off infections. I was a walking pharmacy. I complied with everything the CF team presented me with and duly embraced their treatments of Cystic Fibrosis without thought or question. Just thinking that it will keep me strong and good life force, gave me no reason to rock the proverbial boat. As I got older though, I started to become prone to more and more chest infections, no longer were oral antibiotics hitting and nipping the infection in the bud. From oral medications, I was now being treated more and more through the use of Intravenous antibiotics. The use of intravenous medication started becoming a bi-annual affair.

End of Year 2010 for the TLT4CF!

December 8, 2010

This year has being a whirlwind of new & old events for the Tracie Lawlor Trust for Cystic Fibrosis. A few new events went a head this year, Olive Mcgraths “Tracie’s walk” in which 70 people walked from Castlebridge to Wexford town, along it’s beautiful keys & half foot-paths on the way in.

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